Riding the Waves of Motivation: Staying Afloat on Off Days

The Highs of Motivation

We’ve all felt it — that surge of energy when motivation courses through our veins. It’s the fuel that powers us to tackle our goals, the wind in our sails pushing us towards success. On these days, we’re unstoppable, checking off tasks with a vigour that seems to come from a boundless well.

The Lows of Demotivation

But then, there are the other days. The odd ones where that well of motivation seems to have dried up overnight. We wake up feeling like we’re wading through treacle, every task an insurmountable mountain. It’s normal, yet it can make us feel isolated, as if we’re the only ones struggling while the rest of the world charges ahead.

Understanding the Cycle

It’s crucial to recognise that motivation isn’t constant; it’s a cycle. Like the ocean’s tides, it ebbs and flows. Accepting this can be liberating. It means that feeling down or unmotivated isn’t a failure — it’s part of the human experience.

Strategies for the Low Days

So, what can we do when motivation is scarce? Here are a few strategies:

Start small: Tackle the smallest task on your list. Completing it can give you a sense of achievement and might just kickstart your engine.
Seek inspiration: Sometimes, we need external sources to light our internal fire. Read a book, listen to a podcast, or watch a TED talk — anything that resonates with you.
Connect with others: Reach out to a friend or colleague. Often, just talking about our lack of motivation can help dissipate it.
Be kind to yourself: Remember, it’s okay to have off days. Be as compassionate to yourself as you would be to a friend in the same boat.

Embracing the Journey

Motivation is not just about the highs; it’s about learning to navigate the lows. It’s about understanding that our worth isn’t tied to our productivity on any given day. So, on those odd days when you’re feeling down, remember that the tide will turn. The key is to ride the wave, not fight against it.

What is Coeliac disease and how does it affect people?

Coeliac disease is a serious condition that affects the digestive system. It is caused by an abnormal immune response to gluten, a protein found in wheat, barley, rye, and some oats. When people with coeliac disease eat gluten, their immune system attacks the lining of their small intestine, causing inflammation and damage. This prevents them from absorbing nutrients properly and can lead to various health problems.

Coeliac disease is not a food allergy or intolerance. It is a lifelong autoimmune disorder that requires strict adherence to a gluten-free diet. There is no cure for coeliac disease, but following a gluten-free diet can help manage the symptoms and prevent complications.

Symptoms of coeliac disease

Coeliac disease can affect people of any age, gender, or ethnicity. However, it is more common in people who have a family history of the condition or other autoimmune diseases. The symptoms of coeliac disease vary from person to person and can range from mild to severe. Some people may not have any symptoms at all, while others may experience:

Digestive problems, such as diarrhoea, constipation, bloating, gas, stomach pain, nausea, vomiting, and indigestion
Fatigue, weakness, and anaemia (low red blood cell count)
Weight loss or poor weight gain
Growth problems and delayed puberty in children
Skin rashes, such as dermatitis herpetiformis (itchy blisters on the elbows, knees, buttocks, and face)
Mouth ulcers and dental enamel defects
Bone and joint pain and osteoporosis (weak bones)
Neurological problems, such as headaches, numbness, tingling, seizures, and ataxia (loss of balance and coordination)
Reproductive problems, such as infertility, miscarriage, and low birth weight
Mood changes, such as depression, anxiety, and irritability

Diagnosis of coeliac disease

If you suspect that you or your child may have coeliac disease, you should consult your GP as soon as possible. Do not start a gluten-free diet before getting tested, as this can affect the accuracy of the diagnosis. Your GP will ask you about your symptoms, medical history, and family history. They will also perform a blood test to check for antibodies that are produced by your immune system when you eat gluten. If the blood test is positive or inconclusive, you will be referred to a gastroenterologist (a specialist in digestive disorders) for further tests. The gastroenterologist will perform an endoscopy (a procedure that involves inserting a thin tube with a camera into your mouth and down your throat) to take a biopsy (a small sample of tissue) from your small intestine. The biopsy will be examined under a microscope to look for signs of damage caused by coeliac disease.

In my case, I had a gastroscopy and a colonoscopy on the same day, which took about an hour altogether. The reason for the colonoscopy was that, given the symptoms I had presented with to my GP she was concerned that I might have some form of bowel cancer. Thankfully that turned out not to be the case.

Treatment of coeliac disease

The only treatment for coeliac disease is a strict gluten-free diet for life. This means avoiding all foods that contain wheat, barley, rye, and sometimes oats. You will also need to check the labels of processed foods for hidden sources of gluten, such as malt extract, modified starch, soy sauce, and some flavourings and thickeners. You may also need to avoid cross-contamination from utensils, cookware, or surfaces that have been in contact with gluten.

Eating gluten-free can help heal the damage to your small intestine and improve your symptoms. However, it can also be challenging and require careful planning and guidance. You may benefit from seeing a dietitian (a specialist in nutrition) who can help you plan a balanced and varied gluten-free diet that meets your nutritional needs. You may also need to take supplements of vitamins and minerals that you may be lacking due to malabsorption.

Living with coeliac disease

Coeliac disease is a lifelong condition that requires constant vigilance and adaptation. It can affect your physical health as well as your emotional and social well-being. You may face challenges such as coping with symptoms, adjusting to dietary changes, managing complications, finding support from others who understand your condition.

However, with proper diagnosis and treatment, you can live a healthy and fulfilling life with coeliac disease. You can find information and support from various sources such as:

Coeliac UK: A charity that provides advice, resources, recipes, events, and campaigns for people with coeliac disease
NHS: The national health service that provides information on coeliac disease diagnosis
Your GP: Your primary care provider who can monitor your condition, prescribe medication if needed, refer you to specialists if needed, etc.
Your gastroenterologist: Your specialist who can perform tests, confirm diagnosis, provide treatment options, etc.
Your dietitian: Your specialist who can help you plan a gluten-free diet, advise you on nutrition, etc.

Coeliac disease is a serious condition that affects the digestive system. It is caused by an abnormal immune response to gluten, a protein found in wheat, barley, rye, and some oats. The only treatment for coeliac disease is a strict gluten-free diet for life. Eating gluten-free can help heal the damage to your small intestine and improve your symptoms. However, it can also be challenging and require careful planning and guidance. You can find information and support from various sources such as Coeliac UK, NHS, your GP, your gastroenterologist, and your dietitian. By following their advice, you can live a healthy and fulfilling life with coeliac disease.

What is Sleep Apnoea and how does it affect people?

Sleep apnoea is a common sleep disorder that affects millions of people worldwide, and there’s evidence to suggest many more undiagnosed people. It occurs when the muscles in the throat relax and narrow during sleep, causing interruptions in breathing. These interruptions can last from a few seconds to minutes, and can happen hundreds of times a night. People with sleep apnoea may not be aware of their breathing problems, but they often snore loudly and gasp for air. They also tend to wake up feeling tired, groggy, and irritable.

Sleep apnoea can have serious consequences for your health and well-being. It can increase your risk of developing high blood pressure, heart disease, stroke, diabetes, and depression. It can also impair your concentration, memory, and decision-making skills, making you more prone to accidents and errors at work or school. Moreover, it can affect your relationships, mood, and quality of life.

The good news is that sleep apnoea can be diagnosed and treated effectively. The first step is to consult your doctor if you have any of the following symptoms:

Loud or frequent snoring
Choking or gasping sounds during sleep
Pauses in breathing while sleeping
Excessive daytime sleepiness or fatigue
Morning headaches or dry mouth
Difficulty staying awake or alert during the day
Trouble concentrating or remembering things
Mood swings or irritability
Loss of interest in sex

Your doctor may refer you to a sleep specialist who can perform a sleep study to confirm the diagnosis of sleep apnoea. A sleep study involves monitoring your breathing, heart rate, oxygen level, and brain activity while you sleep. You may be asked to wear a device at home or stay overnight at a sleep clinic.

Children can have sleep apnoea too. In fact, sleep apnoea is quite common in children, especially those who have enlarged tonsils or adenoids, which can block the airway during sleep. Other factors that can increase the risk of sleep apnoea in children are obesity, allergies, hay fever, and certain genetic conditions. Sleep apnoea can affect the quality of sleep and the development of children, so it is important to seek medical help if you notice any signs or symptoms of sleep apnoea in your child.

The most common treatment for sleep apnoea is continuous positive airway pressure (CPAP) therapy. This involves wearing a mask over your nose, mouth or both, that delivers pressurized air into your airway, keeping it open and preventing it from collapsing. CPAP therapy can improve your breathing, reduce your snoring, and enhance your sleep quality and daytime alertness.

Other treatments for sleep apnoea may include:

Oral appliances: These are devices that fit inside your mouth and help to keep your lower jaw forward and your tongue from blocking your airway.
Surgery: This may be an option for some people who have severe or persistent sleep apnoea that does not respond to other treatments. Surgery may involve removing excess tissue from the throat, nose, or mouth, or correcting structural problems that cause obstruction.
Lifestyle changes: These can help to prevent or reduce the severity of sleep apnoea. They include losing weight if you are overweight or obese, quitting smoking if you smoke, avoiding alcohol or sedatives before bedtime, sleeping on your side instead of your back, and keeping a regular sleep schedule.

In my case I use an APAP machine (similar to a CPAP but it automatically adjusts the air pressure depending on need) as I also have central apnoeas. Central apnoeas are pauses in breathing that occur during sleep because the brain does not send the proper signals to the muscles that control breathing. They are different from obstructive apnoeas, which are caused by a blockage in the airway. Central apnoeas can have various causes, such as heart failure, stroke, brain injury, or high altitude. They can also cause symptoms such as snoring, daytime sleepiness, headaches, and mood changes. Central apnoeas can be diagnosed by a sleep study

If you think you or a family member may have sleep apnoea, do not ignore it. Seek medical help as soon as possible and follow the treatment plan recommended by your doctor. By doing so, you can improve your health, well-being, and quality of life.

Continuing Learning

I had a productive day yesterday. In the morning I was visited by a doctor from Atos who was assessing me for my PIP claim. I’ve been on indefinite DLA since 2005 and had the dreaded brown envelope telling me that was ending back in July and that I had to claim PIP from then on.

These assessments are generally negative and stressful, not only because the staff are either from Atos or Capita, who both have bad track records, but also because they focus on what you can’t do rather than what you can.

However, the lady who visited was lovely – warm and friendly and put me at ease within minutes. The assessment went well I think, though I won’t know until I get the decision.

In the afternoon I visited Sheffield College. Back in February I gained my level 1 certificate in BSL with Sense in Rotherham, but they don’t offer level 2. I signed up at Sheffield and am looking forward to continuing to learn this fascinating language. Like my first BSL tutor, the chap running this course is deaf and there will be no spoken language in class so this should be interesting.

The train journey to Sheffield was straightforward and on arrival I snapped this picture on my phone:

Which got a great response on Facebook. I was surprised as it was just a snap and I couldn’t actually see properly when I took it as the sun was in my eyes.

The train journey back after registering at the college was eventful – I had to get off the train at Meadowhall, just one stop before Rotherham, because there was a train stuck at Rotherham with a passenger waiting for an ambulance. This wasn’t a big issue as the next train to Rotherham arrived just a few minutes later so I was back on track.

It was nice to have had a day off work and to have managed to get stuff done without too many issues.

Review of 2012 and Looking Forward to 2013

January 1st saw the introduction of the new, secure, Blue badge. On the 5^th I appeared on BBC Look North (on behalf of Disabled Motoring UK) talking with Peter Levy about the changes and about enforcement of the scheme. This involved getting to the studio in Leeds (somewhere I was already familiar with after my appearance on Radio Leeds in 2011). I was mic’d up in the newsroom and positioned in front of a rack on wheels containing some equipment that looked like mixers, 2 small screens (one showing me and the other showing Peter in another studio) and on top of it all a camera and bright light, which managed to make the most of my shiny forehead! The technician who had mic’d me up and made me comfortable appears in the clip as a hand in the background pretending to work.

January 8^th saw the birth of my youngest Niece Phoebe, who I had in my arms within 30 minutes of her being born. My memory is not great but I vividly remember that at home we had just sat down to a Sunday tea of chicken, rice and potato wedges when I got a call informing me that there had been complications during her birth and asking if I could get to the hospital. When I arrived it turned out that Sarah, Phoebe’s Mum, was not well, though I never did find out the details of the problem.

In other news January saw me meeting Pan Aveyard, bag packing on my Birthday, the news that Mat Fleming was being put in for GCSE Maths 2 years early, Von’s car throwing a wobbly, Joe Fleming ending up in hospital with suspected broken ribs and my friend Liz Ellis speaking on BBC Radio Leeds. I was also disappointed at not having been selected to be a torchbearer after being nominated and getting through the second round of selection, but found out that a distant cousin of mine (also a wheelchair user) was carrying the torch through Dewsbury which was cool.

February saw me at my first training session for the Olympics. An orientation session hosted by Lord Coe and Eddie Izzard which was informative and entertaining. This proved to be a challenge to get to as it was held at Wembley Arena and coincided with some of the worst snow seen in London, making a simple 10 mile journey take around 4 hours. I was one of the lucky ones who managed to keep my car moving – I encountered rather a lot of BMW’s and Mercedes’ sliding and slithering around and unable to get up the hills, forcing everyone that could keep moving to have to weave among them.

One of the more positive aspects of that session was that it gave an idea of just exactly how many of us were involved, a chance to speak to some of them and provided a spark of excitement in anticipation of the Olympics.

February was the month of Grimsby YMCA’s annual Sleep Easy campaign and fundraising project. I spent a night in Grimsby sleeping on the street with just some cardboard and lots of layers of clothing for comfort. This was just one night and was incredibly difficult, I think at most I only actually slept for around 15 minutes and it was certainly an eye opener.

February also saw me start doing admin support in the fundraising office at Cancer Support Bradford and Airedale for 2 days/week. This had come out of a conversation with my friend Sarah Firth who works there and (hopefully!) allowed the fundraisers and Sarah to be able to spend more time doing what they’re best at and less time doing admin tasks. This also got me out of the house and interacting with people as well as improving my confidence at the realisation that I could still cope (after some 2/3 years away) with working in an office and be able to problem solve and from time to time even answer IT related questions. This lasted right up to going away for the Olympics in June and the intention was to return to this after the Olympics, but life took a bit of a twist.

In other news for February, I took Libby to the library for the first time, something she loved and has enjoyed ever since, I attended my first (and last!) ever football match, watching Huddersfield Town get beaten by Sheffield Something on Valentines Day and I met and became friends with my “Brother from another Mother” Mark Winterbourne.

March came and brought with it fuel shortages and another bag pack for Cancer Support Bradford and Airedale. At this session I was stationed by an exit of the supermarket with Amber, my friend Sarah Firth’s Daughter and we got talking about MS, what it is and how it happens etc and about the neurological system in general. Something which Amber took in and later educated her Mum on. That was deeply impressive to me and was an illustration of how much you can influence a child just by talking to them.

March was also the month Von passed her 3^rd theory driving test which brought her another step closer to getting her license after so many years of being knocked back.

For me March also saw me at Stoke Mandeville stadium spending the weekend handcycling on track and out on the road with the guys and girls from the UK Handcycling Association. This was a lot of fun but also a lot of hard work.

In other news for March I managed to spill coffee on my beloved Kindle DX but also managed to strip it down and clean it all out and it survives to this day. And I learned an important lesson when I failed to display my Blue badge whilst parked in Huddersfield and had to ask Kirklees Council to withdraw a parking ticket, something they agreed to do but weren’t obliged to do.

April was Gadget Show Live in Birmingham with Mat Fleming, this was pretty amazing and gave me a chance to drool over lots of lovely gadgets and then watch a live show featuring some amazing acts like Laserman and Addictive TV.

This was also the month I decided to trial Windows 8 on my laptop and then, shortly after installing it, wondered what I’d done. I soon got used to it though and quickly grew to like it, despite the oft-complained about “split personality”.

April also saw the inaugural #CostaPosse meet up. I have some amazing friends – Liz Ellis, Mark and Elaine Winterbourne and Sarah Firth and we decided to get together at Costa Coffee in Greengates, Bradford. The main link between us all is Cancer but when we’re together we laugh and laugh and laugh. More details of the #CostaPosse are in my post titled “Special Friends”.

This was a busy month for Libby too when she started Karate, graded to White belt and took part in her first tournament.

In other news I got my shifts for the Olympics and got a scare when Libby collapsed on the kitchen floor in front of me, which saw me panicking and frantically trying to get hold of Von and then calling an Ambulance.

May saw another training session for the Olympics which introduced me to my car, a BMW 320d ED, and also to radio communications and the associated protocols as well as a bit of customer service and road safety. After these I was then allowed to get behind the wheel and after a bit of familiarisation with the car and navigation system headed out onto the streets of London for assessment with a driving examiner. Thankfully I passed with full marks for safety and a few pointers such as checking the inside mirror when turning left for cyclists.

May also saw me say goodbye to my beloved BlackBerry when I upgraded to my HTC One X Android phone, which was a massive leap over the BlackBerry in terms of functionality and ease of use. This was very kindly set up for me by the ever-knowledgeable Pan Aveyard at his free social media and Android drop-in.

In June Joe Fleming managed to get a job with his first interview after leaving school. He had printed off several copies of his CV and handed them out at various shops in Dewsbury and got an interview, turned up dressed smartly and got the job.

I battled my fear of heights when I got harnessed up and hooked to a wire to zip slide from the Tyne Bridge in Newcastle. This was 750 feet from the bridge crossing the river to land on the bank at the other side and was done the day after Bear Grylls had taken the Olympic flame down the same line. This was in aid of Cancer Support Bradford and Airedale and required my good friend Sarah Firth to firmly tell me I was doing it and had no choice after I got on the parapet of the bridge and then announced I couldn’t do it. I did do it, am glad I did and will be doing it again.

June also brought another Olympic training session. This time it was venue-specific and so I took me to the ExCel centre in London which was to be my base depot for sessions covering depot procedures, vehicle checks, checking in and out of car keys, radios and paperwork and health and safety around the depot. There was also information around security and access to the depot and I was given a VAP to allow my own car to access the depot and was allocated a parking space. For the rest of the day we hit the road to familiarise ourselves with the routes we would be using. I had passengers in my car from the Metro newspaper who were writing a feature about the Transport team and in particular about the 2 disabled drivers based at our depot, being me and Graham Day.

In other news Libby graded to Yellow belt in Karate and I collected my Olympic uniform.

July was a busy month, beginning with Von managing to fall while ice skating and doing herself some serious damage. It initially looked as though she might have a spinal injury but a few hours later it turned out she’d broken her scaphoid, a small bone near the thumb.

The biggest news from July was Von passing her practical driving test, finally! I was sat by Gatwick airport in London in my Olympic BMW when the message came through and I reckon the scream would probably have been heard in Yorkshire.

And in July I started my Olympic driving duties. My first shift, driving that car out of the depot and onto the streets “properly” made me feel proud, though nervous at what to expect. Those nerves soon turned to boredom though when it transpired that demand for the service had been over-anticipated. During one shift a bunch of us were sent up from the depot in the basement of ExCel into the main area and allowed to watch some of the sport. I ended up watching some fencing which was fun.

After my first shift I headed from London straight to Birmingham where Jodi Picoult and her Daughter Samantha van Leer were doing a talk and book signing of their first co-authored book Between the Lines. This was the second time I’d met Jodi and being in a lecture theatre the stage was down some steep stairs. Jodi and Samantha came up to meet me and sign books and Jodi made a nice comment about my Olympic uniform.

In July Cancer Support Bradford and Airedale held their annual Moonlight Walk event for ladies. I volunteered to help and acted as “emergency” driver carrying first aider Aimee Vonstra-Edwards. During this and whilst following the ladies one of them became exhausted and became a passenger. I was trying to shout encouragement to the rest still taking part. It was a very successful and enjoyable event and there was a great atmosphere.

Back to the Olympics, The Times newspaper did a feature on 3 of the Games Makers and I was one of them. This involved an interview with one of their writers and a photoshoot session at Tower Bridge Studio, the first time I’ve had a professional photoshoot and the first time I’ve worn make up! I was very impressed at the way the photos turned out though.

In other news Libby made us proud with her SAT results and her acting as Nancy in the school production of Oliver and I confronted a man acting bizarrely on our street, parking his car and watching kids playing then driving round the corner, parking again, putting on a hat to cover his face and walking round the street. That was also reported to the Police and thankfully he hasn’t appeared again.

August saw me in hospital after going to A&E in lots of pain and being admitted. Not a great time but made better by visits from family and a surprise visit from the the #CostaPosse Sarah, Mark and Liz, who I understand had some fun of their own trying to find the ward and confusing the nurses. High point of that stay and what made me laugh through the pain was being told by one of the nurses that I was “well equipped”.

September came and with it a new job, working as an IT contractor at Rotherham Hospital, I just can’t stay away from the places lol. It was quite possibly very well timed though as I wasn’t in a good place mentally at the time

September also brought 2 thank you letters just days apart. 1 from Cancer Support Bradford and Airedale thanking me for my efforts over the few months I was there and 1 from David Cameron that was a thank you to all the Games Makers for their efforts during the Olympics.

And being September it was time for the DMUK Awards. This was a fab and successful event with examples of great things being done by and for disabled people and showcased some wonderful achievements. I was particularly pleased to be reunited with an old friend – a certain 1932 Argson mobility trike which has been restored by Twisted Mind Custom Motorcycles and also to meet and talk with Sue Marsh who, along with Kaliya Franklin, received the Denny Denly award in recognition of their work on producing the Spartacus report which forced the Government to rethink some of their welfare reforms. Sue is a lovely lady who was so modest and it was great to meet her.

In other news, Libby successfully got through another Karate tournament and I was named as the first “champion” of the Great Yorkshire Stair Climb.

October was all about In the Pink. My awesome friend Sarah who works at Cancer Support Bradford and Airedale had set herself a challenge to wear something Pink every day of October and to have at least 10 photos taken out in public places. Now at first this might sound easy but when she mentioned about how it made her feel, really self-conscious and nervous, it becomes clear that it wasn’t quite that easy. Sarah got donations of all sorts of items of clothing in Pink including wigs and even had a Pink car to use for the month. Could she be any more conspicuous! Sarah did an amazing job and pulled it off magnificently.

October also saw my first visit to Top Gear Live, which I loved and the full release of Windows 8 which, after having trialled it, I upgraded to whilst away in a hotel.

In November my friend Pan Aveyard finally managed to jump out of a plane. This was supposed to have happened in July but the skydive people had to rearrange due to the weather, then it was supposed to be September but I had a job to go to so had to rearrange. So it finally happened, on a cold but dry and clear day this brave (mad) man went up in a plane, which is bad enough, and then jumped out of it. Thankfully he made it back to earth safely and in so doing raised lots of cash for Cancer Support Bradford and Airedale. Respect.

November held a challenge for me as well in the form of the Great Yorkshire Stairclimb. This event involved climbing up the stairs inside Yorkshire’s tallest building, Bridgewater Place in Leeds. There are 522 stairs and I believe I may be the only wheelchair user in the world to have completed such a challenge and am possibly the only wheelchair user ever to have been on the roof of this building.

In a moment of fun November brought me my first ever taste of race car driving on a track. Organised by ST Accessible Motorsport and using their race prepared Volvo S60 with 240bhp and which can be quickly adapted to be driven by people with a wide range of disabilities. This was a huge amount of fun and after telling Von about it it sounds like she’ll be up for a go at a future session.

November also saw me arranging my big challenge for 2013. I signed up to take part in the Edinburgh 5K wheelchair race and the day after the Edinburgh marathon. Then was told by the organisers that I wasn’t allowed to take part in the marathon as they don’t allow wheelchairs in. There then followed almost a month of discussion while they tried to find a valid excuse for not allowing me to take part. The details of that are in my post titled “The Challenge is to be Accepted for the Challenge”.

December started with Gadget Show Live @ Christmas at the ExCel centre and it sure was strange seeing it in civilian guise after having been based there during the Olympics. The exhibition wasn’t as good as at Birmingham and was a lot smaller but the show was fab.

And December entailed getting ready for Christmas. Decorating the house, wrapping gifts and writing cards. Catching up with friends and family.

I was also asked by Dilwyn Price to be best man at his wedding to my Mum in May next year which was a shock but in a nice way.

We spent Christmas Day at my Mum’s in Wales which was nice and relaxing and made it more enjoyable than usual.

Looking forward to 2013….

2013 already has a challenge arranged in the form of the Edinburgh wheelchair race and marathon and I will be starting training for that shortly and starting on a diet too. May is going to be a busy month with my Mum’s wedding on the 4^th in Wales, the DMUK AGM in Glasgow on the 18^th and the Edinburgh events on the 25^th and 26^th.

The Challenge is to be Accepted for The Challenge

Some of you might know I enjoy a challenge. Something to push me, to take physical limitations and see what I can do with them. Some of these challenges have hopefully made people think about what I and perhaps they are capable of. Maybe think about what limitations are imposed on them and where those limitations come from – whether that be from within or from external sources. I have been told by a few people that some of what I’ve done is inspirational and that’s awesome – the thought that something you do can have an impact on someone else is mind-blowing.

Now usually when I sign up for or arrange these challenges it’s relatively straightforward. I follow whatever process is in place and fill out paperwork etc, hand over whatever details are requested and sometimes have a chat with someone about any adaptations that might be needed to allow me to participate. That last bit can be essential for reasons of health and safety or just to make life easier for either me or for other people and it’s not something I mind in the slightest – I would much rather people ask me than make assumptions or guess and get it wrong. So that’s all easy and then at the allotted time I turn up, do the necessary (hopefully successfully). have some fun and meet some amazing people, tire myself out and then go home again. Sometimes there are interviews with press and TV or radio people as well.

In this modern age disabled people can be seen all over the place. We work, we have relationships, we socialise and we do sport and so on. Basically just living a modern lifestyle based around our interests, same as everyone else. We have this year had a fantastic time for sport in particular with the Paralympics being a lot more visible than ever before and according to research changing a lot of opinions among members of the public towards disabled people.

So imagine my shock when, given the above, I signed up to take part in the 2013 Edinburgh Marathon and then the next day signed up to do the Edinburgh 5K wheelchair race being held the day before the marathon and, after receiving emails confirming my entries had been accepted I then received one telling me I wasn’t allowed to take part in the marathon as they didn’t allow wheelchairs onto the course. Here’s how it went…..

From: Lady at GSI Events
Sent: ‎29‎ ‎November‎ ‎2012 ‎09‎:‎46
To: daniel_anderson_mcintyre@hotmail.com
Subject: Edinburgh Marathon Festival 2013

Hi Daniel

I was just having a look at your entry for next year and noticed that you have entered both the standard marathon and the 5k wheelchair race? Could you confirm which race you wish to take part in (the full marathon doesn’t have a wheelchair option)?

Many thanks

And my reply to that was:

From: Daniel Anderson-McIntyre
Sent: ‎29‎ ‎November‎ ‎2012 ‎09‎:‎53
To: Lady at GSI Events
Subject: RE: Edinburgh Marathon Festival 2013

Hi xxxxxxx,

I was hoping to do both. I am a wheelchair user and there’s nothing on the marathon page about wheelchairs being excluded.Dan McIntyre

So the next contact I had was with another lady whose signature says she’s an events manager, this is what she had to say:

From: Lady 2 from GSI Events
Sent: ‎29‎ ‎November‎ ‎2012 ‎10‎:‎21
To: daniel_anderson_mcintyre@hotmail.com
Subject: Edinburgh Marathon Festival

Hi Daniel,

I’ve been passed your email from the marketing team. Thanks for your interest in the Edinburgh Marathon. Unfortunatley there is not a marathon wheelchair race. UKA rules state that any wheelchair or handbike race must be separate from a running race and due to the road closure timing restrictions we are not able to facilitate a wheelchair or handbike race for the half or full marathons. We do not have the same restrictions for the 5K race.

I am sorry that we are not able to offer the marathon race however I hope that you enjoy the 5k race on the Saturday.

Many thanks,

So I got hold of an up-to-date copy of the UK Athletics regs and read them top to bottom paying particular attention to the sections on road races and the amendments for disabled participants. Finding nothing to corroborate what this lady had told me I responded

From: Daniel Anderson-McIntyre
Sent: ‎30‎ ‎November‎ ‎2012 ‎10‎:‎24
To: Lady 2, Lady 1 at GSI
Subject: RE: Edinburgh Marathon Festival

Hi there,

Having read the UKA rules for road races and the rule amendments for disability athletics (rules 201-215 and rules D206-D212) I am unable to find anything to corroborate your comment “UKA rules state that any wheelchair or handbike race must be separate from a running race”. I wonder if you could point this rule out to me?

Thanks.

Dan McIntyre

And the reply I got was:

From: Lady 2
Sent: ‎30‎ ‎November‎ ‎2012 ‎14‎:‎54
To: Daniel Anderson-McIntyre
CC: Lady 1
Subject: Re: Edinburgh Marathon Festival

Hi Daniel,

Thanks for your email. I have spent some time going through the rules this morning and you are completely correct – it doesn’t need to be a separate race just a separate category. We start hand bike and wheelchair athletes at the front of the race so that there are not wheelchairs or hand bikes interspersed in a mass of runners reducing the risk of injury to all participants. The 5k has a lane designated so that on the downhill section where the wheelchair and hand bike participants generally reach higher speeds.

Due to health and safety issues, we can’t allow a wheelchair category in the full marathon however I can investigate this for the half marathon further. Can you let me know if you are interested in racing in the half marathon and if you are what time you would expect to complete the race in, that you would be racing in a self propelled wheelchair and the spec of this wheelchair (for example standard or racer).

Thanks Daniel,

Now this was really annoying as it makes assumptions about responsibility and control, basically says I would be a health and safety risk and also attempts to persuade me to enter a lesser event. So my response to this was terse:

From: Daniel Anderson-McIntyre
Sent: ‎04‎ ‎December‎ ‎2012 ‎10‎:‎19
To: Lady 2
CC: Lady 1
Subject: RE: Edinburgh Marathon Festival

Lady 2 and Lady 1,

No, I am not interested in taking part in a half marathon. If I had been then I would have entered and paid for that event.

I have registered and paid to enter the marathon and the 5K. At the time of entry (and, having just checked, still) there is nothing in the event details to say that I may not do this. Looking at the terms and conditions again there is nothing that says I cannot and in fact the terms and conditions state that the only wheeled devices allowed on the course are wheelchairs.

So far you have quoted a non-existent UKA regulation to me and now you are trying to use “health and safety issues” as an excuse for not allowing me to participate. This is beginning to sound like deliberate obstruction aimed directly at a disabled person.

Dan

This was met with an out of office message advising people with queries to contact several other names, so I forwarded the above to all the addresses given. Over a week later I had still had no response so followed it up with:

From: Daniel Anderson-McIntyre
Sent: ‎12‎ ‎December‎ ‎2012 ‎12‎:‎36
To: Lady 1, Lady 2, Several other team members
Subject: FW: Edinburgh Marathon Festival

Hi there,

8 days after the below I have not had any response. Would someone kindly let me know what the plan is moving forward?

The last contact I had was on Facebook when someone asked me to message them, which I did. The reply I received was “Thanks Dan” which is no use to anyone.

Am I to be allowed to participate in these events or not? If yes then please say so and if not please arrange for a refund of all fees paid and I will contact a solicitor.

I would appreciate a response by close of play today.

Dan

Now whether it was the mention of a solicitor that did it or not I don’t know but 7 minutes later I received the following:

From: Lady 2
Sent: ‎12‎ ‎December‎ ‎2012 ‎12‎:‎43
To: Daniel Anderson-McIntyre
Subject: Re: FW: Edinburgh Marathon Festival

Hi Daniel,

Apologies for the delay in responding to you, we have been chatting to Run Britain and the race director to come up with some guidelines and what would be required to accommodate wheelchair athletes on the marathon course.

If you can bear with me until early next week so that I can fully respond with all the information. It would probably be easier to give you a call, would you be able to give me the most convenient number to call you on and we can chat through it early next week?

Thanks,

Now this is starting to sound more positive but I prefer to keep things like this to written communications. Telephone calls are not only painful for me but are a great tactic often used by managers in order to avoid gathering of evidence. With this in mind I waited for them to come back to me via email with more info. After waiting until the back end of the following week I got back in touch with them:

From: Daniel Anderson-McIntyre
Sent: ‎19‎ ‎December‎ ‎2012 ‎22‎:‎06
To: Lady 2
Subject: RE: Edinburgh Marathon Festival

Hi Lady 2,

It’s now late next week and I’ve heard nothing. This has been going on for almost a month now and is becoming ridiculous. I really must push for a resolution asap. Not only is this getting extremely annoying but I also need to make plans as the intention is to fundraise for a Cancer support charity through this event, a JustGiving page was created when I received the confirmation email and has already had donations.

I find it difficult to understand what the problem is and why GSI Events seems intent on excluding disabled participants, particularly given the sporting achievements we have seen this summer.

I wonder what view the Edinburgh News and BBC Edinburgh would take…?

Dan

And very quickly I received a response, sent from her iPhone no less:

From: Lady 2
Sent: ‎19‎ ‎December‎ ‎2012 ‎22‎:‎44
To: Daniel Anderson-McIntyre
Subject: Re: Edinburgh Marathon Festival

Hi Daniel,

I tried to call you on the number that you gave us on our system however it just rang but was going to try again in morning as it was quite late on Monday and Tuesday I called.

Basically I’ve spoken with the race director and he doesn’t see an issue but there is a section of the course later on that I wanted to just alert you to as its not Tarmac, it’s a gravel surface, we fill in any large holes but it was just to say its not as good a surface as normal roads. As long as you’re fine with that then we don’t see any issue. Was going to ask as well if you plan to have someone with you as you complete the race?

Will try you again in the morning if you want to chat anything through.

Best wishes,

Lady 2Sent from my iPhone

And my response (after heaving a sigh of relief and wondering why they didn’t just do this in the first place) was:

From: Daniel Anderson-McIntyre
Sent: ‎20‎ ‎December‎ ‎2012 ‎08‎:‎34
To: Lady 2
Subject: RE: Edinburgh Marathon Festival

Lady 2,

Thank you. The gravel shouldn’t be a problem and I may have my Fiancee with me but I’m not sure at the moment.

Dan

And after this the entire tone of the communications changed. I don’t know whether anyone had “had a word” with this lady or what but she’s suddenly become very helpful:

From: Lady 2
Sent: ‎20‎ ‎December‎ ‎2012 ‎12‎:‎06
To: Daniel Anderson-McIntyre
Subject: Re: Edinburgh Marathon Festival

Hi Dan,

Just tried to give you another call but no answer, just checking that I have the correct number xxxxxxxx269?

Anyway glad that the gravel won’t cause you any issues. It all sounds very romantic completing a marathon together but hard work!!

If you need to chat anything through or ask any questions then just ask, my number is xxxx xxx xxxx or you can email me, whatever suits you.

Good luck with the training and Merry Christmas when it comes.

Best wishes,

So she got the wrong end of the stick about my meaning but when I pointed that out I got another surprise:

From: Daniel Anderson-McIntyre
Sent: ‎20‎ ‎December‎ ‎2012 ‎12‎:‎27
To: Lady 2
Subject: RE: Edinburgh Marathon Festival

Hi Lady 2,

The number is correct I just can’t answer as I’m at work. My fiancee won’t be doing the marathon with me, I’m hoping she’ll be there to see the start and end and also transport my normal wheelchair between the 2 points.

Thanks – Dan

And the surprising and helpful bit:

From: Lady 2
Sent: ‎20‎ ‎December‎ ‎2012 ‎12‎:‎45
To: Daniel Anderson-McIntyre
Subject: Re: Edinburgh Marathon Festival

Hey,

Ok no problem. Give me a shout nearer the time and I’ll get a parking space sorted out nearby for her to go to.

Thanks,

So all’s well that ends well and I am able to make this my big challenge for 2013, but why does it feel like it’s been a challenge already and why, in this day and age, should that have been?

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